Zack Pemberton-Whiteley
Chair, Steering Committee Member

Zack Pemberton-Whiteley is a non-practicing lawyer working as Patient Advocacy Director at Leukaemia Care, a UK based blood cancer support organisation, founded in 1969.

Zack joined Leukaemia Care in 2014. As Patient Advocacy Director, he heads up their advocacy, campaigns, policy, healthcare professional education and patient support services.

Zack leads on the development and implementation of campaigns to highlight key issues that are reported by patients – such the ‘Spot Leukaemia’ campaign. This is informed by Zack’s work producing the Living with Leukaemia report, which includes the findings from surveys of over 4,000 leukemia patients.

He also works extensively on enabling access to treatment, such as representing Leukaemia Care in their involvement in health technology appraisals across the UK, with the National Institute of Health and Care Excellence (NICE), the Scottish Medicines Consortium (SMC) and All Wales Medicines Strategy Group (AWMSG).

Zack is now Chair of the Acute Leukemia Advocates Network (ALAN), Chair of the Blood Cancer Alliance and a member of the CML Advocates Network Community Advisory Board (CAB).