Why is evidence-based advocacy important ?
ALAN Journal Article - Understanding quality of life in patients with acute leukemia, a global survey Journal articles
2023
Pemberton-Whiteley Z, Nier S, Geissler J, Wintrich S, Verhoeven B, Christensen RO, Salek S, Oliva EN, Ionova T, Bradley J. Understanding quality of life in patients with acute leukemia, a global survey. J Patient Cent Res Rev. 2023;10:21-30 https://institutionalrepository.aah.org/jpcrr/vol10/iss1/3/
Abstracts
2023
Final Abstract Code: PB2673 – EXPERIENCES AND VIEWS OF LEUKEMIA CARERS: A GLOBAL SURVEY
Final Abstract Code: P1688 – LIVING WITH ACUTE LEUKEMIA: A GLOBAL SURVEY OF PATIENTS AND CARERS EXPERIENCE
2022
Zack Pemberton-Whiteley, Samantha Nier, Nick York, Deborah Baker, Michael Rynne, Nicole Schroeter, Denis Costello, Lidija Pecova, Esther Natalie Oliva, Tatiana I. Ionova, Sam Salek, Jennie Bradley: Experiences and Views of Leukemia Patients: A Global Survey, Blood (2022) 140 (Supplement 1): 5258–5259. https://doi.org/10.1182/blood-2022-163309
Zack Pemberton-Whiteley, Samantha Nier, Jan Geissler, Sophie Wintrich, Anne-Pierre Pickaert, Sam Salek, Esther Natalie Oliva, Tatiana I. Ionova, Jennie Bradley: Differences in experiences reported by patients with acute and chronic leukemia: A global survey, Blood (2022) 140 (Supplement 1): 13273–13275. https://doi.org/10.1182/blood-2022-163466
2020
Zack Pemberton-Whiteley, Jan Geissler, Sophie Wintrich, Rita O. Christensen, Bregje Verhoeven, Samantha Nier, Esther Oliva, Sam Salek, Tatyana Ionova, Anne Rosemary Tate, Jennie Bradley Identifying factors associated with variations in quality of life for patients with different acute leukemia types: A global survey Abstract release date: 05/14/20) EHA Library. Pemberton-Whiteley Z. 06/12/20; 294246; EP1766.
Zack Pemberton-Whiteley, Samantha Nier, Jan Geissler, Sophie Wintrich, Bregje Verhoeven, Rita I O Christensen, Sam Salek, Esther Natalie Oliva, Tatyana Ionova, Jennie Bradley, Anne Rosemary Tate: Investigating the Quality of Life of Patients with Acute Leukemia, with a Focus on Age and Patient-Reported Experience, Blood (2020) 136 (Supplement 1): 25–26. https://doi.org/10.1182/blood-2020-141293
2019
Zack Pemberton-Whiteley, Esther Natalie Oliva, MD, Jan Geissler, Sophie Wintrich, Sam Salek, PhDRPh FFPM MCMS MRPSGB FESCP, Tatyana Ionova, PhD Professor, Anne Rosemary Tate, Jennie Bradley: Identifying Differences in the Quality of Life of Patients with Acute Leukemia: A Global Survey, Blood (2019) 134 (Supplement_1): 4785. https://doi.org/10.1182/blood-2019-128818
Publications from projects in which ALAN is involved
2023
E. Pennings , Y. Cabrerizo , P. Lecot , C. Sanges , F. Thielen , U. Jaeger , J. Delgado , A. Kremer , M. Hudecek , M. Luu , N. Bolaños , S. Clavreul , A. Kienesberger , S. Nier , S. Sheth , L. Gambotti , C. Dreuillet , H. Negre , C. Uyl-de Groot , C. Girvalaki , M.J. Kersten , On behalf of the T2Evolve (IMI) consortium: Improving the CAR T-cell treatment journey and access to CAR T-cell therapy across Europe, presented at EBMT-EHA 5th European CAR T-cell Meeting.
2022
Katharina M Lang, Tamás Bereczky, Jan Geissler, Natacha Bolanos, Kathryn E. Morgan, Ananda Plate, Ana Vallejo, Sophie Wintrich, Nick York, Peter Loffelhardt, Brian Huntly, Pieter Sonneveld, Mario Boccadoro, Valeria Santini, Šárka Pospíšilová, Andreas Hochhaus, Tiziano Barbui, Peter Borchmann, Christian Buske, Yann Guillevic, Frederico Calado, Katy Harrison, Dalia Dawoud, Guillermo Sanz, Jesús María Hernández, Ellen De Waal, Martje Barbus, Renate Schulze-Rath, Lars Bullinger: Pan-Stakeholder Core Outcome Set (COS) Definition for Hematological Malignancies within the Framework of Harmony and Harmony PLUS Projects, Blood (2022) 140 (Supplement 1): 5285–5287. https://doi.org/10.1182/blood-2022-157549