Sophie has been working with patients and support groups for the last 14 years. At first through her career in medical market research work, specializing in patient interviews, then as European Patient Liaison for the MDS Foundation from 2007 to 2010 and then as Aplastic Anaemia Registry Manager at King’s College London from 2010 to 2013.
In 2008, as part of her MDS Foundation work in the UK, Sophie helped set up and develop the MDS UK Patient Support Group, together with then chairman David Hall and founding members Sharon Berger and Fiona Pirilla.
Since 2010, Sophie has been an active founding member of the MDS Alliance, the new worldwide umbrella group for national MDS organisations. MDS Alliance provides assistance, guidance, networking, mentoring, sharing of resources and information materials for established and emerging MDS groups worldwide.
End of 2016, in connection with MDS Alliance and all other international haematology patient groups, Sophie was elected as one of the Epags, in connection with the new EU initiative ERN – European Reference Network for Rare haematology diseases.