First Acute Leukemia Global Summit
On 26th September 2020, ALAN held its first (and virtual ) Acute Leukemia Global Summit.
With approximately 100 registrants and attendees from all over the world, the global summit was dedicated to the development of its members as patient advocates and dealt with important topics for acute leukemia patients and carers.
The program featured renowned acute leukemia experts as well as other medical specialists and advocacy leaders from around the world:
Zack Pemberton-Whiteley, ALAN Chair welcomed attendees and opened the global summit, followed by Samantha Nier, ALAN Network Manager who gave an overview of ALAN’s plans and future activities.
Esther Oliva, MD at Grande Ospedale Metropolitano Bianchi Melacrino Morelli (Italy) and Co-chair of the EHA SWG Quality of Life and Symptoms and Adele K. Fielding, Professor of Haematology/UCL Cancer Institute (UK) guided us through the hot topics and latest advances respectively in AML and ALL.
The medical session was followed by an advocacy session on “patients’ involvement in access decision” during which Giora Sharf (founder of Flute of Light (Israel) and co-founder of CML Advocates Network) and Zack Pemberton-Whiteley (CEO of Leukaemia Care UK and Chair of ALAN) gave their opinion from a patient perspective, followed by Adele K. Fielding Professor of Haematology/UCL Cancer Institute (UK) who gave her perspective as a physician. We then welcomed Pauline McGuire, Principal Pharmaceutical Analyst from Scottish Medicines Consortium and Francesco Pignatti from EMA who both shared their views from payers and regulators’s perspective. The presentations were followed by a panel discussion.
You can also find the recording of the global summit here
- Introduction, ALAN’s plans and Medical session (part on AML) : https://youtu.be/eiYvzI_cdVc
- Medical session (part on ALL) : https://youtu.be/sPmYYSN_Ono
- Advocacy session (presentations and panel discussion): https://youtu.be/841X_6GIXIg
We are looking forward to seeing you next year for the second Acute Leukemia Global Summit, hopefully in person this time !