Bregje has been an active national and international patient advocate with Hematon, the Dutch organisation for lymphoma and blood cancer patients since 2014. In 2018, she became chairman of the Patient Advocacy Committee at the European Society for Blood and Bone Marrow Transplantation (EBMT) and in 2019 part of the steering committee of the worldwide Acute Leukemia Advocates Network (ALAN).
At Hematon, she co-founded and coordinated HOPP, a ‘Patient Participation in Clinical Research’ working group. She is a patient expert in various Patient Advisory Communities and Groups and is co-author of various guidelines and publications. Some of her many extra activities are for Matchis (Dutch Centre for Stem Cell Donors) including presentations for sponsors and she also holds workshops and lessons for students and nurses in academic hospitals.
Bregje has been diagnosed with AML in the past and successfully treated with an allogeneic bone marrow transplantation, and can draw on own experience. She is a EUPATI-fellow, speaker at conferences, a qualified teacher and has a master’s degree in social and cultural anthropology.